I am often asked how I came to treat concussions. My initial reaction usually fluctuates between 2 thoughts: (1) Do I tell them the long version of how it started, or (2) do I just state I specialize in dizziness and balance disorders and a concussion is just one of many causes? My response is typically the latter for I suspect most people are not too interested in my story. Recently, however, I was asked to do just this – share my story. It goes something like this…
It was 1996 and I was working in an outpatient ”Day Program,” which is a multi-disciplinary outpatient program dedicated to re-entry into home, school/work and community for individuals who have suffered a neurological injury (e.g., head trauma, stroke, etc.). It was truly one of the greatest experiences of my life. It was there that I met a teenage girl who had just undergone surgery for brain cancer. She had dizziness and notable balance difficulties but that is not what defined her. It was her joy, her commitment, and her hope. She also wouldn’t accept her symptoms being explained by the repeated response of “you’re doing well, considering you just underwent major brain surgery for a large tumor.” It was always followed by a sigh, maybe a slight rolling of her eyes and, an under the breath, “but I want to know why.” I found myself being driven by the same question in an effort to better understand her signs and symptoms.
One Friday after our session, I was talking on the phone and noticed a brochure in the trash can about a course for dizziness and balance disorders. It was being held in Houston that very weekend. I decided to go. For 2 days I was overwhelmed. What I came home with was a manual and more questions than I had before the course. Despite the fear of it all, I had a tool…not just a means to start treating dizziness and balance disorders but the framework to seek more knowledge and understanding. Although I became increasingly interested in dizziness and balance disorders and the implementation of vestibular rehabilitation, the medical community was somewhat skeptical. A year later, however, I met a neurotologist who wanted to work together and specialize in this patient population. I was given an opportunity to develop a Balance Center within an outpatient physical therapy center. It was there that “treating concussions” became more of a focus. Somewhere between 1998-1999, I received a call from Tina Bonci, ATC, MS and Head Trainer of the Women’s Athletic Department at The University of Texas. There was an athlete who had suffered dizziness and unsteadiness for almost a year following a concussion.
The athlete’s clinical examination and evaluation revealed signs and symptoms essentially identical to someone who had suffered an inner ear infection and had not fully compensated. Thus, we proceeded through vestibular rehabilitation with excellent outcomes. Considering that I had worked with patients who had suffered head trauma and had solely been seeing patients with dizziness and balance disorders for the last 2 years, not only was it not a huge leap but it just made sense. There were also a growing number of studies from Kevin Guskiewicz, PhD, ATC and colleagues about changes in balance following a concussion. It was more specific vestibular testing, however, that we found to be the most correlated with this particular athlete. After reviewing the literature, understanding the value of implementing various tests and observing the positive results of vestibular rehabilitation post-concussion, a comprehensive program from baseline to sideline to post-injury to rehabilitation was developed. Today, the integration of these multiple components combined with anecdotal evidence from numerous patients has evolved into a comprehensive concussion program known as Concussion Health.
There are still many unknowns about concussions despite that a distinction of signs and symptoms between traumatic brain injury and a concussion trace back to Dr. Rhazes who lived from 850-923 AD. Certainly, the legislative and media attention we see today is unprecedented. Fortunately, there is also an ever-increasing commitment to establishing best practice guidelines such as those seen in the Zurich 2008 Concussion Guidelines. Experts agree that no tool should be used in isolation. It requires a multi-disciplinary team approach centered around the client/patient whether the injury is sports related, fall related, work related, etc. We have more objective measures today (e.g., computerized testing) to support our clinical assessments as well as guide the rehabilitation process and provide clinicians with a variety of tools to aid them in challenging RTP decisions. I am excited about the evolution of concussion management and grateful to be involved in the process. It is an opportunity to stay aware of what we know, recognize what we don’t know and, above all, keep our eyes open to discover what we don’t even know we don’t know.
So, the intent of this was to tell my story…it started with a brochure in the trash can, which has evolved into a life-long passion. There are a number of individuals that have paved the way as pioneers and provided me the opportunity to have a career that is not a job but a privilege. I owe a special thanks to Robert Baloh, MD, Gaye Cronin, OTD, OTR/L, John Epley, MD, Joel Goebel, MD, Kevin Guskiewicz, PhD, ATC, Timothy Hain, MD, Susan Herdman, PhD, PT, Fay Horak, PhD, PT, Gaye-Kronin, OT, Neil Shepard, PhD, Anne Shumway-Cook, PhD, PT, Ronald Tusa, MD, PhD, Susan Whitney, PT, PT, ATC, and David Zee, MD. I specifically choose these people not because they know me but from what I’ve learned from their work and commitment to teach others. Of course, there are countless others who have paved a direct path in my professional career (and might claim to know me). To all I am grateful, especially for loved ones and the experiences of life that will always remain my teacher as long as I keep showing up for class.